Following increasing interest by members, we set up PRISM PDA Ireland in April 2017. This group is for parents, carers and professionals supporting those with Autism who experience extreme and persistent Anxiety Based Demand Avoidance (Pathological Demand Avoidance). It is particularly important to give a voice to autistic children, teenagers, individuals and their families. Research suggests that without awareness, acceptance and understanding, autistic individuals with a PDA profile are at risk of lifelong negative impacts on education, mental health, employment, and inclusion in the community. In Ireland, there is lack of research exploring PDA, and the lived experience among individuals on the autism spectrum and their families.
In 2018, Prism DLR commissioned a research study to investigate PDA within the context of Ireland - Mapping Experiences of Pathological Demand Avoidance in Ireland. Findings from this study were presented at the Autism Europe and Autistica conferences in 2019, and at the first PDA conference in Ireland on the 25th January 2020, and the presentation is available to download from this page.
One of the outputs from the study was collaboration between experts to produce a resource to assist parents, educators and healthcare professionals: Evidence-informed Advice for Best Practice in Supporting Pathological Demand Avoidance, also available to download from this web page.
The PDA Society in the UK has a wealth of information freely available to individuals and families. Additional resources for families, teachers and clinicians are also available from our web repository at http://www.pearltrees.com/prismpda
Finally, we encourage you to begin a support group in your own local area, as building strong networks is the most productive way to increase awareness, acceptance and understanding.
Video presentations from PDA Ireland Conference